Children and Young People: Palliative Care

Use this guide to find information resources about children and young people's palliative care including books, reports and journal articles.

Last updated: 23/01/2024

Key Resources
Books
Journals

Key Resources

Royal College of Nursing (2018) RCN competencies: caring for infants, children and young people requiring palliative care. 2nd edn. London: RCN.

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Blackburn M et al. (2019) Talking about sex, sexuality and relationships: guidance and standards. For those working with young people with life-limiting or life-threatening conditions. Bristol: Together for Short Lives.

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Brook L (ed.) (2024) Association of Paediatric Palliative Medicine master formulary. 6th edn.

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Chambers L and Kelly K (2023) Stepping up: A guide to developing a good transition to adulthood for young people with life-limiting and life-threatening conditions. Bristol: Together for Short Lives.

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Jassal S S (ed.) (2022) Basic symptom control in paediatric palliative care. 10th edn. Bristol: Together for Short Lives.

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Mancini A, Uthaya S, Beardsley C, Wood D and Modi N (2014) Practical guidance for the management of palliative care on neonatal units. London: Chelsea and Westminster NHS Foundation Trust.

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Pinney, A (2016) Understanding the needs of disabled children with complex needs or life-limiting conditions. Council for Disabled Children.

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Together for Short Lives (2019) Caring for a child at end of life. A guide for professionals on the care of children and young people. Bristol: Together for Short Lives.

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Together for Short Lives (2013) A core care pathway for children with life-limiting and life-threatening conditions. 3rd edn. Bristol: Together for Short Lives.

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Together for Short Lives (2018) Hidden lives: tackling the social exclusion of families caring for a seriously ill child. Bristol: Together for Short Lives.

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Together for Short Lives (2018) A guide to children’s palliative care: supporting babies, children and young people with life-limiting and life-threatening conditions and their families. 4th edn. Bristol: Together for Short Lives.

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Together for Short Lives (2017) A perinatal pathway for babies with palliative care needs. 2nd edn. Bristol: Together for Short Lives.

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We would like to thank the RCN CYP Palliative Care community and Sue Langley - Library & Information Services Manager, East Anglia’s Children’s Hospices, for their input into the development of this subject guide.

Books

Amery J (2016) A really practical handbook of children's palliative care for doctors and nurses anywhere in the world. (no place): Lulu.

Borrow From RCN Libraries

Black B, Wright P and Limbo R (2016) Perinatal and pediatric bereavement in nursing and other health professions. New York: Springer Publishing.

Boath E and Pfund R (2016) Palliative care nursing of children and young people. London: Routledge.

Borrow from RCN Library services

Carter B, Levetown M and Friebert S (2013) Palliative care for infants, children, and adolescents: a practical handbook. 2nd edn. Baltimore: Johns Hopkins University Press.

Dahlin C, Coyne P and Ferrell B (2016) Advanced practice palliative nursing. New York: Oxford University Press.

Borrow from RCN Library Services

Downing J (ed.) (2020) Children’s palliative care: an international case-based manual. Cham: Springer.

Ferrell B and Hospice and Palliative Nurses Association (2016) Pediatric palliative care. New York: Oxford University Press.

Goldman A, Hain R and Liben S (2012) Oxford textbook of palliative care for children. 2nd edn. Oxford: Oxford University Press.

Borrow from RCN Library Services

Grinyer A (2012) Palliative and end of life care for children and young people: home, hospice and hospital. Chichester: Wiley-Blackwell.

Hain R and Jassal S (2016) Paediatric palliative medicine. 2nd edn. Oxford: Oxford University Press.

Borrow from RCN Library Services

Mancini A, Price J and Kerr-Elliott T (eds.) (2020) Neonatal palliative care for nurses. Cham: Springer.

Nash P, Hussain Z, and Parkes M (2015) Multifaith care for sick and dying children and their families: a multi-disciplinary guide. London: Jessica Kingsley.

Borrow From RCN Libraries

Nash S, Nash P, and Darby K (2015) Spiritual care with sick children and young people: a handbook for chaplains, paediatric health professionals, arts therapists and youth workers. London: Jessica Kingsley.